RELIEVED: Brooke Dwan is pleased the government will continue a payment to help with the cost of specialty foods for her daughters, Willow (left) and Kennedy, who both suffer from a rare genetic disorder.
RELIEVED: Brooke Dwan is pleased the government will continue a payment to help with the cost of specialty foods for her daughters, Willow (left) and Kennedy, who both suffer from a rare genetic disorder. Kerri Moore

Warwick mum fights funding cut to keep daughters healthy

WHEN Warwick mum Brooke Dwan heard the Federal Government was planning to scrap a vital payment to her family, she wasn't taking it lying down.

Earlier this year it was announced a small monthly payment to support those affected by Inborn Error of Metabolism disorders would cease in December.

Brooke depends on the payment to help with the cost of buying specialty food for her daughters, Willow and Kennedy, who both have phenylketonuria (PKU) - a form of IEM.

The girls must adhere to a strict diet of expensive specialty foods or suffer severe health effects, including brain damage.

Upon hearing news of the planned cut, Brooke wrote to politicians to share her disappointment, and the Metabolic Dietary Disorders Association also took up the fight to stop the cut.

She said the result has been worth all the effort.

"I was very surprised and excited we got such a good result and they have reinstated it," Brooke said.

"I think it just came through them being educated and knowing the information they had been given was wrong.

"This is something that can't be managed solely on supermarket foods and we really need that money to keep our daughters healthy.

"We are feeling very relieved and confident we will be able to manage and see our daughters have access to the medical foods they need.

"There's a lot of peace of mind."

Member for Maranoa Bruce Scott played an integral part of the government's decision to continue the $11.7 million support program.

"Particularly in the Maranoa, IEM patients and their families are burdened with the additional cost of sourcing vital specialty low-protein foods not available in most supermarkets," Mr Scott said.

"Geographical isolation inflates these costs; therefore I made urgent representations - on behalf of my constituents - to the Federal Minister for Health so we could continue this important government subsidy into the future."



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