Jamie Ferrar is hosting Light the Night for Charlee later this month in honour of her daughter Charlee, who passed away from a brain tumour in 2014.
Jamie Ferrar is hosting Light the Night for Charlee later this month in honour of her daughter Charlee, who passed away from a brain tumour in 2014. David Nielsen

Mum continues fight after losing her five-year-old to cancer

WITH a love for all things pink and an infectious personality, Charlee Ferrar was the apple of her parents' eyes from the moment she was born.

The vibrant five-year-old had no trouble making friends at kindy and quickly became a well-known member of the close-knit Kalbar community.

Like many other girls her age, Charlee's days were spent dressing up like a princess, singing loudly to the Frozen soundtrack, up until she was taken away by Australia's most deadly childhood disease.

Funeral service for Charlee Ferrar at the Fassifern Christian Church in Kalbar. Photo: David Nielsen / The Queensland Times
Funeral service for Charlee Ferrar at the Fassifern Christian Church in Kalbar. Photo: David Nielsen / The Queensland Times Contributed

On March 31, 2013, Charlee fell and bumped her head, with subsequent tests revealing the then three-year-old had a life-threatening tumour.

After a 19-month battle with an aggressive brain tumour the five-year-old passed away in November 2014.

Now her family is fighting to raise awareness and funds to battle the diffuse intrinsic pontine gliomas, or DIPG tumours, which took their daughter away.

Charlee's mum Jamie has organised a family fun day to raise funds for the Isabella and Marcus Paediatric Brainstem Tumour Fund to fund research into DIPG.

"Last year, despite the rain, wind and water restrictions, we made $13,000 so we are hoping to do even better than that this year," Mrs Ferrar said.

"We will have fireworks, face painting, a jumping castle and a kids' fashion parade because Charlee loved to dress up.

"Kalbar is an amazing community and they are still supporting us."

The second annual Light the Sky for Charlee fundraiser will also include food, drinks and plenty of live entertainment.

"Brain cancer is the leading cause of death in children under 10 and we're hoping by sharing Charlee's story we can help change that statistic," Mrs Ferrar said.

Hundreds of balloons in Charlee's favourite colours, pink, yellow and purple, will be released on the day and people can also place glowing lanterns at sunset in honour of their loved ones lost to cancer.

The fundraiser will be held on Saturday, September17, at Lake Moogerah Caravan Park from 2-9pm.

For more information, visit the Charlee's Little Wishes Facebook page.



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