Jessica Lennie’s 8-year-old son Conner has a rare chromosomal disorder.
Jessica Lennie’s 8-year-old son Conner has a rare chromosomal disorder. Brenda Strong GLADISA

His smile infectious

CONNER Rashleigh, 8, is a little crook. But that trademark smile's still on his face.

It's an award-winning grin. Proud mum Jessica Lennie shows off several certificates Conner's earned for flashing it.

He's well-liked among his classmates at Rosella Park School.

He's off sick today with tonsillitis. But Jessica's already had a call from Conner's teacher saying he's missed and to hurry on back.

"You're just a wee bit popular," Jessica tells her son.

Conner's propped up on his mum's lap. He's a little fella, weighing just 20 kilograms.

When Jessica was 32 weeks pregnant, the doctors discovered Conner had a bilateral cleft palate.

He was born without half his chromosomes.

A geneticist told the family that Conner was lucky to be born alive.

Conner can't walk or talk. But a neurologist found that his brain waves were normal for a boy of his age.

Jessica wonders what goes on in his head.

For him to turn around one day and speak would be a wish come true.

"For him just to say, 'Mum it hurts here' would be like winning a million dollars… 'I love you' would be worth a billion."

THEY NEED...

 A support group for parents and carers of all special needs kids, where the young ones can play and the adults can vent and share experiences

 Conner used to do gym at the Cubby House before it closed down.

 Jessica would love to see more places for special needs kids to go, hang out and play.

 



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