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Brave mum bids to save her tiny tot

DETERMINED: Kerry Blake is trying to raise money for her daughter Pippa, 23 months, for treatment in America.
DETERMINED: Kerry Blake is trying to raise money for her daughter Pippa, 23 months, for treatment in America. Warren Lynam

KERRY Blake has already lost one of her adorable 23-month-old twins, so is determined to fight to make sure she doesn't lose the other.

But the Caloundra West mum is struggling against a health system that seems unable to provide answers to the illness that plagued her beautiful babies, Braxton and Pippa, since birth.

It seems the twins were born with a rare genetic disorder called mitochondrial disease which compromised their development.

Over the past two years, Ms Blake has made many trips to Brisbane's Royal Children's Hospital with either twin facing a health scare.

Pippa suffered a cardiac arrest on Mother's Day last year. It was feared she would never recover but she did.

And just when it seemed the twins were making headway, with Braxton starting to say words like "mummy", tragedy struck as he suffered a cardiac arrest while being treated for a respiratory infection on December 9. There was no warning

"At 10pm (in hospital), I gave him a big kiss and a cuddle and said, 'Mummy will see you in the morning'," Ms Blake said.

"He seemed to be doing okay, then at 3.18am they called to say I had to get in there as he was not doing so good. When I got there, they (medical staff) were doing CPR."

Braxton couldn't be revived.

His death has prompted Ms Blake to search the world for solutions for Pippa.

She believes her best chance of helping her little girl, who is unable to walk or talk and is fed through a nasal tube, is in America's NAPA centre but the trip will cost at least $30,000.

"NAPA has intensive therapy for speech, hyperbaric oxygen therapy and others. It is not going to fix the problem, but could help Pippa with her core strength so she can have more head control and will strengthen her," Ms Blake said.

Ms Blake desperately needs fundraising help.

To learn more, visit the Facebook page "Fight for Little Pippa".

Donations can be made to Heritage Bank , account name of Braxton and Pippa Blake. BSB: 638- 010 and account Number: 132 19103

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