News

Family supports Jeans for Genes as baby battles illness

Twelve-month-old Tyler Batterham's dad Dean Batterham, aunt Michelle Kiss and mother Chantelle Davies support Jeans for Genes Day.
Twelve-month-old Tyler Batterham's dad Dean Batterham, aunt Michelle Kiss and mother Chantelle Davies support Jeans for Genes Day. Luka Kauzlaric

JEANS for Genes Day is a cause close to the heart for a Gladstone family, after their bouncing baby boy fell critically ill four weeks ago.

After being rushed to the Royal Children's Hospital in Brisbane, Tyler Batterham, now 12 months old, was placed in ICU for a week and then had to stay on in Brisbane for a further couple of weeks.

Tyler Batterham (12 months) with his parents Dean Batterham and Chantelle Davies.
Tyler Batterham (12 months) with his parents Dean Batterham and Chantelle Davies. Luka Kauzlaric

Tyler's mother Chantelle Davies said at the time doctors didn't know what type of future he would have or whether any brain damage had occurred.

Diagnosed with an extremely rare genetic metabolic condition called malonic aciduria, Tyler is now in a stable condition and back smiling in Gladstone.

"They hadn't seen a case like it down there," Ms Davies said.

"He definitely surprised them all."

Tyler's condition is a one in 19.5 million rarity and means he will require ongoing treatment for the rest of his life.

If everyone just puts in a dollar, that money goes a long way to help people like Tyler

Ms Davies said that at the moment the genetic condition is screened for during newborn testing in the USA.

He's the only child in Australia on his specialised formula, and his parents will have to take extra precautions with his diet and ensure he doesn't fall ill.

"I would like to find out about how to get the heel prick test here in Australia," Ms Davies said.

At the moment Tyler's family don't know what the future will hold, as there has not been a lot of research on it.

There are a few people in Melbourne that have a similar condition to Tyler, so his family is currently trying to get in contact with their families.

Aunt Michelle Kiss is holding a morning tea at her workplace, the Central Queensland Institute of TAFE Gladstone campus, on Friday to help raise awareness for genetic diseases and to encourage people to donate money to assist in children's medical research.

"If everyone just puts in a dollar, that money goes a long way to help people like Tyler," Michelle said.

There will be merchandise available and a donation box for Tyler's medical fund.

Michelle encouraged other people to host an event for Jeans for Genes Day and said if people wanted to donate to Tyler's medical fund they could do so at either of the Commonwealth Bank branches in Gladstone.

Jeans for Genes Day

  • Jeans for Genes Day is on Friday, August 7
  • It's a day when workplaces, schools and streets across Australia will be awash with denim in a united stance against childhood disease.
  • 2013 is the twentieth anniversary of the event.
  • To register an event visit jeansforgenes.org.au to receive Jeans for Genes donation boxes and promotional posters.
Michelle Kiss with her nephew Tyler Batterham, 12 months.
Michelle Kiss with her nephew Tyler Batterham, 12 months. Luka Kauzlaric

Topics:  charity gladstone jeans for genes day



Six hideaway bars to escape winter chill

THE last season of GoT finally uttered the words we’ve been waiting six seasons to hear and now that the weather has cooled down in Brisbane, “winter is here.”

Our six art gallery picks for a creative day out

Queensland's Gallery of Modern Art always has a fun, exciting and interesting exhibition on show for the whole family to enjoy.

YOU'D be mistaken in thinking Brisbane wasn't an arty city.

Brisbane's arts and culture events centre stage

You loved the film, now you're about to love the musical. Don't miss The Bodyguard The Musical in Brisbane this July.

THE arts and culture events you don't want to miss.

Homewares stores to fulfil your Instagram dreams

No Caption

You too can become an Insta-star with these fab stores.

Date nights under $50

Nothing is more romantic than a picnic with a cracking view.

NOT every date has to cost you a bomb.

Top 10 Brisbane experiences to cross off your bucket list

Do yourself a favour and get amongst the food truck scene. Eat Street is a great place to start.

A GOOD bucket list doesn’t have to span continents or cost millions.

Six mega sporting events you need to be at this year

Don't miss all the action trackside this season.

IF THERE is one thing Brisbane does damn well, it’s play host.

Could Schapelle be heading for Gladstone?

Australian Schapelle Corby is escorted by Bali Police at the parole office in Denpasar, Bali, Indonesia, 27 May 2017.

Schapelle's mother teases her free daughter could be Gladstone bound

Fraudster couple fails at same scam twice

Gladstone CBD from The Oaks Hotel roof, Febuary 17, 2015.

Photo Mike Richards / The Observer

Gladstone man and woman attempted to rip off two local businesses.

Local Partners

Battle raging over money to fund CQ roads

Funding for CQ's road upgrades is being ripped out of the region leaving our projects languishing at the starting line says QLD Minister.


Win a $1000

GROCERY GIFT CARD!
Learn More

What to expect at Birds of Tokyo's Ipswich gig

The band will perform at the Racehorse Hotel on Friday.

BAND member Glen Sarangapany talks music, pub grub and doing shoeys

What public holidays are left in 2017

Ipswich residents will get the day off tomorrow for the show.

IPSWICH residents will get tomorrow off for the show

Caitlyn comes home to launch debut album

Gympie's Caitlyn Shadbolt will launch here debut album Songs On My Sleeve at an exclusive all-ages concert in Gympie on Friday, May 26.

Win tickets to Caitlyn's album launch

Karl Stefanovic's rant about Schapelle Corby 'a bit rich'

The fact is Stefanovic is paid extremely well by a television network that lives and dies by ratings.

Gladstone gets cheesy with espresso bar masterclass

CHEESE EXPERT: Special guest Peter Gross shared his knowledge on everything about cheese.

'Something we could do': more food events for region

Could Schapelle be heading for Gladstone?

Australian Schapelle Corby is escorted by Bali Police at the parole office in Denpasar, Bali, Indonesia, 27 May 2017.

Schapelle's mother teases her free daughter could be Gladstone bound

Six things you never knew about Men in Black

Mushu the pug

It's been 20 years since Men in Black first hit cinemas

10 strange stories behind famous sex scenes

Khaleesi and Khal Drogo in a steamy moment.

Every set has their own way of filming sex scenes

HBO spills new details on Game of Thrones’ final season

Game of Thrones’ eighth and final season will only have six episodes.

New details about what to expect from the eighth, final instalment.

Karl’s rant on Corby: ‘Made to look like idiots’

Karl Stefanovic is sick of hearing about Schapelle Corby.

Today co-host launched a tirade against Schapelle Corby media circus

New $46.7m counter-terrorism facility to be built in Wacol

Premier Annastacia Palaszczuk, pictured with Police Commisioner Ian Stewart, has announced plans to build a new counter-terrorism facility in Wacol.

The facility will be built over three years.

Home to a sex worker: Sordid history of iconic Coast shed

Milojevic Djordjevic's daughter Linda at the derelict shed on Yandina-Coolum Road.

The shed was once a liveable 'barrack'.

This is real estate's billion-dollar man

Bob Wolff at AREC with John McGrath of McGrath Real Estate.

They don’t call him the “Billion dollar man” for nothing

Man's amazing comeback from monster crisis

Pat O'Driscoll agents Penny Keating and Doug Webber sold 56 Agnes St, The Range at auction over the weekend.

NOT long ago, he sold his possessions to pay staff. Now he's back.

Report reveals progress on $319m airport upgrade

Aerials of the Sunshine Coast.Jetstar plane in front of the Susnhine Coast terminal, Sunshine Coast Airport.

Over two dozen government approvals needed for airport expansion

Ready to SELL your property?

Post Your Ad Here!